<div> <div style="padding-bottom: 5px;"><img class="img-auto" style="min-width: 100px; float: left;" src="//cdn.poll-maker.com/26-986071/geneticalliance-color300.jpg" alt="GeneticAlliance_color300" width="165" height="66" /></div> </div> <div style="text-align: right;"><img class="img-auto" style="min-width: 100px; max-width: 994px;" src="//cdn.poll-maker.com/26-986189/lphicolorlogo.jpg" alt="LPHIColorLogo" width="128" height="76" /></div> <div> </div> <div style="text-align: center;"> </div> <div style="text-align: center;"><span style="font-size: 18pt; color: #000080; font-family: verdana, geneva, sans-serif;"><strong>Track Your Success - Community-Focused and Patient-Centered</strong></span></div> <div style="text-align: center;"> </div> <div> <p><span style="font-size: 12pt;">Choose all of the answers that best fit the approach taken by your project team to engage the community and ensure patient centeredness (try not to select what you think is the “correct” answer!). At the end of each quiz, you will receive an engagement “score” and a “style.” The engagement score benchmarks how well your team includes the community voice, how attuned your team is to your community’s expressed needs, and highlights areas for improvement. The engagement style characterizes your team’s approach to patient centeredness and engaging with communities.</span></p> </div>

Track Your Success - Community-Focused and Patient-Centered

Choose all of the answers that best fit the approach taken by your project team to engage the community and ensure patient centeredness (try not to select what you think is the “correct” answer!). At the end of each quiz, you will receive an engagement “score” and a “style.” The engagement score benchmarks how well your team includes the community voice, how attuned your team is to your community’s expressed needs, and highlights areas for improvement. The engagement style characterizes your team’s approach to patient centeredness and engaging with communities.

What's your institution's name?

How does your team ensure that there is a focus on what the patient community cares about most and is meeting their needs?

We know what the community needs are and have developed a project to address these needs

Patient leader feedback is collected throughout the research process

In addition to patient leaders, feedback is also solicited directly from the community throughout the research process

Community needs and wants are evaluated throughout the research process, and processes are changed as a result of that feedback

The engagement strategy informs some project activities. Where there is not engagement, a good reason for excluding the patient community is clear

Engagement of the patient community is at the core of planning, development, and carrying out activities

How does your team gather all the differences in experiences across your patient community?

When we announce our findings, we hope that they will be useful across the patient community

If communities have sensitivities to the research or healthcare communities, team members address those concerns as needed

Our community advisory groups and partner organizations share many different experiences and perspectives with us

We make sure our team and patient community leaders are representative of the community's cultures and experiences

What structural resources does your team have in place to support participation and inclusion?

Everyone has a space, they just need to be able to speak up

We rely on Memorandums of Understanding (MOUs), engagement-related policies, and procedural documents to make sure our engagement approach is fair and enacted in all parts of the organization

An engagement team is part of the study plan

Engagement needs are part of budgetary discussions

Participants are encouraged to be active in their health and we give them tools for education and self-management

If engagement is important to your team's mission and the success of your team's project(s), is that value shown appropriately in the budget?

Appropriate financial resources are given to engagement

The overall budget is large enough to support necessary engagement activities

Engagement is a central budget item with appropriate funds for leadership, participation, evaluation, and reporting through the entire project

Budgets are split between partners and/or the patient community has decision-making power over how engagement budgets are divided and spent

If you would be interested in receiving engagement services from Genetic Alliance or LPHI, please leave your email.

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