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ALD Parent Survey

What form of ALD does your child have? (Check all that apply)
Addison's disease Asymptomatic
Adrenomyeloneuropathy
Childhood cerebral ALD
Asymptomatic ALD
At what age was your child diagnosed?
Was any diagnostic testing performed on your child before symptoms arose?
Yes
No
Not sure
Do you think that enough research for ALD is being conducted?
Yes
No
What is one thing that would make your/your child's life easier regarding their disease?
What are the potential complications of ALD?
What is the most difficult thing as a parent about having a child suffer from ALD?
Has your child received treatment for their respective condition?
Yes
No
Was your child diagnosed through newborn screening?
Yes
No
If you had the option to go through newborn ALD screening, would you have?
Yes
No
My child was diagnosed through newborn screening
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