ALD Parent Survey

What form of ALD does your child have? (Check all that apply)

At what age was your child diagnosed?

Was any diagnostic testing performed on your child before symptoms arose?

Do you think that enough research for ALD is being conducted?

What is one thing that would make your/your child's life easier regarding their disease?

What are the potential complications of ALD?

What is the most difficult thing as a parent about having a child suffer from ALD?

Has your child received treatment for their respective condition?

Was your child diagnosed through newborn screening?

If you had the option to go through newborn ALD screening, would you have?